Saturday, December 3, 2011


It is December and many people are preparing for the holiday season..My family and friends ask me often what I want for Christmas. I always tell them the same thing as I have for the past 5 years. I want to feel better. In reality I know that is a stupid thing to say because there is no magic buton they can press or pill they can give me to instantly stop my suffering. But, I say it anyway because in my messed up logic I figure maybe if I repeat it enough I will feel better. Anyway I encourage everyone to donate during this season to a cause that matters to them. Whether it be an animal charity, those less fortunate, or even Lyme disease causes. Most other causes get a lot of publicity and Lyme disease causes are left hidden. Those suffering with Lyme would really appreciate the kindness. Personally, in the spirit of the holidays I have donated to a number of organizations such as the local food bank, toys for tots, and of course some Lyme disease charities.Another thing to remember especially during this time of year is spread the kindness.Take for example my post "a little kindness..." those people who stopped and took just a small fraction of time out of their day to help me. It made a worlds of difference. It wouldnt kill anyone to hold the door open for someone, or ask someone how they are and genuinley care, or help someone with a disability open a door or anything else small like that. It would be so appreciated by the people on the recieving end. Plus it feels really good to make the difference.
...Today it was an emotionally exhausting day for me. It was one of those days where I just felt tired of suffering. Luckily, I have many good friends that cheered my up. I really appreciate that. It made a worlds of difference to know I have a team of people supporting me. I have many friends in Sweden and even though they are an ocean away they too really lifted my mood. Tack så mycket =) This brings me back to my earlier point. If someone looks like they are having a bad day, take the time out to cheer them up. Especially during this time of year. Thanks for reading.

**** It would be really appreciated if you post something kind you did for someone else in the comments for this post.*****

1 comment:

  1. My name is Breizh. I got Lyme's disease when I was fourteen, but didn't get diagnosed until I was sixteen. I'm eighteen now, going on nineteen in June.

    When I was a senior in high school, I helped organize a "Day of Silence" in memory of those who are gay, lesbian, bi, and transgender who have been silenced because of their sexual orientation. I and a group of forty other students dressed all in black and didn't say a single word from first bell till last bell. I did it in honor of my best friend, Zach, who is bisexual and deaf.

    On another note, I know how tough it is, having Lyme's and a wheelchair. As if having Lyme's wasn't bad enough, I was born with a severe case of scoliosis, and my spine is bent at an unnatural angle. With either condition alone, I'm sure that I would not be facing a life in a wheelchair. As of now, I can move around without the assistance of a wheelchair, but one day, I know I'm going to need one. I wake up every day terrified that today's the day. I envy you, in a way. I can't go to college because of my conditions. I would give anything to be able to go to college and continue my education. I also envy you because of the support you've received from friends and family. All of my friends know that I have Lyme's and scoliosis, but most of them forget.

    I just wanted to let you know that you're not alone. One of my best friends found your blog while searching for support groups for me, and he directed me to you. Your struggle and your strength have motivated me, you know, Aly. I'm there for you if you need me. My email is if you ever want to talk.

    Tiocfaidh ár Lá! (Gaelic for "Our time will come".)